Sunday Visit: No Hands But Ours

This is the sweetest video; you must watch it. Eileen shared the story of her daughter’s healing with me and rather than just send you to the No Hands But Ours site, I decided to post it here. I want to increase the odds that you will actually click on it!

You can also visit the original post, My Baby Tells Her Story.

I watched this with several of my kids and we were all laughing and crying.  Sweet Pea is going to share it with her fellow med students — it’s that good.

Happy Sunday.

~Lisa

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Let me introduce myself. Russ and I are the parents of twelve children by birth and adoption, and sometimes more through foster care. I'm the creator of One Thankful Mom which has been as much of a gift to me as to my readers. In 2011 I became a TBRI® Pracitioner* and have lived and breathed connected parenting ever since. I'm deeply honored to be the co-author, together with the late Dr. Karyn Purvis, of The Connected Parent; it is her final written work. I love speaking at events for adoptive and foster parents. I'm also the co-founder of The Adoption Connection, a podcast and resource site for adoptive moms. I mentor and encourage adoptive moms so you can find courage and hope in your journeys of loving your children well.

0 Comments

  1. Eileen
    July 11, 2010

    Thank you for sharing Maya's story. It's funny how when Maya had her end-of-treatment party, I had to consciously work to put on a happy face. At her last test, her viral load was still in the millions and her liver enzymes still many times above the upper limit of normal. The doctor wasn't very hopeful that she'd have success and said she was willing to finish only because Maya was tolerating the side effects so well. I was grateful at the party that we didn't have her final results yet, because I just wanted to celebrate her tenacious spirit, labs be darned. When we did pick up those final results, I've never been more shocked in my life. I was literally floored. I sat right down in the middle of the hall at the hospital. A nurse ran over and started fanning me with a paper. I truly couldn't believe my eyes. Not only was her viral load now undetectable, she was testing negative for the surface antigen AND had surface antibodies! We'd been told that the chance of that happening in a child with chronic hepatitis, was maybe 1%.

    The treatment Maya had isn't currently FDA approved for use in kids with Hep B. It was quite a struggle to get the insurance company to sign onto the whole thing. After an initial denial, we appealed, and thankfully they reversed their decision. Since there weren't other kids' getting this treatment, I think it was a learning experience for everyone involved. I'm so thankful that we had a doctor willing to look outside the box. Now, I've heard there's a pediatric trial in the works for PEG interferon in kids with Hep B. I'm not surprised that our little girl is a pioneer. She's got that pioneer spirit about her!

    Oh, and you mentioned your daughter sharing the video….Maya's doctor may beat her to it. She called the other day and said she was going to share it with the residents there at UW. I think Children's Hospital should be proud!

    Reply
  2. Giann
    July 11, 2010

    Oh my word! She is adorable!!! She made me smile! 🙂
    Thanks Maya (sp?) for making my day!

    Reply
  3. dawn
    July 11, 2010

    That is the most precious thing EVER!!! I think she's the best advocate for special needs adoption that I've ever witnessed. Way to go Maya!!

    Reply
  4. carla
    July 11, 2010

    Thank you for sharing for two reasons, first that it was so touching and Maya is adorable, and second that it encouraged me to continue to move forward with our China adoption. We adopted two children from ET 1 1/2 years ago and it has been a difficult adjustment. I have days where I am just not sure about China, but we have been waiting for this little China jewel for over five years now and it could happen by the end of this year. It made my heart flutter again and the original desire rose up in me. I think we get so caught up in the stress of life that it is all we can see sometimes. This reminded me of the real joys of life! We will move forward and see what God does!!! Blessings!

    Reply
  5. Patty
    July 12, 2010

    Oh my! What a dear little girl!

    Reply
  6. Cass
    July 11, 2010

    Wow. What a special little girl. Thanks for shairing Eileen and Lisa!

    Reply

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